Northeast Regional Center

Down Syndrome Parent Packet

New Parent Down Syndrome Packets are intended to be given to parents who have a new diagnosis of Down syndrome in Calumet, Outagamie, Winnebago, Brown, Marinette, Oconto, Shawano, Door, and Kewaunee counties. Our hard copies are funded and produced in collaboration with the Down Syndrome Association-Fox Cities, the Down Syndrome Association-Green Bay Connection, and ASPIRO.

After reviewing the information we have available on our website, please don’t hesitate to call the Northeast Regional Center at (920) 969-5325 with any questions or for more information.

Navigation Guide: Finding Your Way

(English)   (Spanish)
A navigation guide for Wisconsin families who have children and youth with special health care needs and disabilities. This 56-page .pdf file includes a range of information from ‘Taking Care of Your Health & Family” to “Learning About Education” and “Paying For What You Need”. Available in both English and Spanish.

Facts About Down Syndrome

Facts about Down syndrome from the National Down Syndrome Congress. This link also includes information for new and expectant parents, people-first language, and additional resources for these parents.

Siblings of Individuals with Disabilities

Tips and resources for parents regarding siblings of individuals with disabilities.
Parent Factsheet: (English) Young Adult Sibling Factsheet: (English)
Things siblings would like parents to know (English)

The Katie Beckett Program

(English)   (Spanish)   (Hmong)
The Katie Beckett Program is a special eligibility process that allows certain children with long-term disabilities, mental illness, or complex medical needs, living at home with their families, to obtain a Wisconsin ForwardHealth Medicaid Card. Children who are not eligible for other Medicaid programs because the income or assets of their parents are too high, may be eligible for Medicaid through the Katie Beckett Program. A child may be eligible for this source of Medicaid even if they are currently covered  under a private health insurance policy.

Down Syndrome Books

Click here to search our online library for books on Down syndrome. To check out a book, either call our toll-free hotline at 877-568-5205 or send us an email with your address and requested materials. Please visit our online library for a full description of our check-out policies.

Local Links

Down Syndrome Association of Wisconsin
Down Syndrome Association-Fox Cities
Down Syndrome Association-Green Bay Connection 
Down Syndrome Association-Sheboygan

Other Links

National Down Syndrome Congress

Call Northeast Regional Center CYSHCN at 920-969-5325 or 877-568-5205

Located at: 325 N. Commercial St. Neenah, WI 54913

Open 8:00 AM - 4:30 PM Monday - Friday

© Northeast Regional Center 2021